Sub-scale | Item | Number of meaning units | |
---|---|---|---|
Learning to cope with new role | Monitor course of condition and evaluate significance of changes | 7 | |
Normalize care-receiver routine, within bounds of the impairment | 5 | ||
Perform basic ADL for the care-receiver | 3 | ||
Gain knowledge about the disease | 50 | ||
Cope with the loss/restriction of future family plans | 8 | ||
Providing care according to care-receiver’s needs | Being available when needed | 3 | |
Supervise prescribed treatments and general recommendations | 4 | ||
Evaluate strength/resources of the care-receiver | 5 | ||
Cope with upsetting behaviour of the care-receiver | 9 | ||
Give appropriate consideration to care-receiver’s options and preferences | 6 | ||
Managing own emotional needs | Resolve guilt over ‘negative feelings’ towards care-receiver | 8 | |
Find a locus of blame for the condition/disease | 3 | ||
Separate feelings regarding condition from feelings towards the care-receiver | 5 | ||
Resolve uncertainty about one’s skills as a caregiver | 5 | ||
Release tensions/feelings towards the care-receiver | 28 | ||
Appraising supportive resources | Anticipate needs for future assistance | 77 | |
Designate other responsible caregiver(s) | 18 | ||
Manage feelings towards other family members who do not regularly help | 12 | ||
Maintain the family as effective decision-making group over a long period of time | 3 | ||
Interact with medical, health and social service professionals | 28 | ||
Balancing caregiving needs and own needs | Satisfy needs for creativity/originality to offset tedious routines | 17 | |
Avoid severe drain on physical strength/health | 29 | ||
Make up for or avoid loss/restrictions on future plans and perspectives | 8 | ||
Readjust personal routines | 26 | ||
Compensate for disruption of sleep | 15 |