Characteristics | Care as usual cohort n = 26 | Care pathway cohort n = 28 | p-value |
---|---|---|---|
Mean age (sd) | 58.9 (14.4) | 61.3 (13.9) | 0.537 |
Sex (% female) | 20 (76.9%) | 20 (71.4%) | 0.645 |
Living together with patient (%) | 8 (30.8%) | 5 (17.9%) | 0.267 |
Primary outcome measure | n = 24 | n = 22 | |
Self-rated burden of informal caregiving (mean score SRB-VAS; 0-10a) (sd) | 4.7 (2.8) | 5.5 (2.5) | 0.289 |
Secondary outcome measures | |||
Quality of life (Mean score CSAL; range 0-100a) (sd) | 70.9 (13.8) | 71.0 (12.1) | 0.991 |
Mean (sd) objective burden of caregiving (Erasmus iBMG) | |||
• Domestic duties (hours/week) | 6.1 (9.3) | 7.7 (13.6) | 0.654 |
• Personal care (hours/week) | 1.7 (4.3) | 0.17 (0.76) | 0.121 |
• Moving outside the house (hours/week) | 4.2 (3.8) | 5.3 (4.0) | 0.401 |
• Number of hours help of other informal caregivers / volunteers (hours/week) | 1.6 (2.8) | 1.1 (2.3) | 0.610 |