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Table 3 Main findings sorted as themes, code groups, and sub-code groups

From: The influence of day care centres designed for people with dementia on family caregivers – a qualitative study

Themes

Code groups

Sub code groups

The complex caring role of the family caregiver

Added responsibilities and new tasks

Guiding and assistance in activities of daily living

Providing assistance in

• practical tasks

• personal hygiene

Being sensitive to the persons’ psychological needs

Adapting to changes in person’s social skills

Emotional and relational challenges

Distressing emotions

Feeling

• guilty conscience

• sorry for

• being tied down

Demanding interaction

Increased dependency

Disagreements and misunderstandings

Confrontations

Nagging

Lack of interests and engagement

Adapt to the needs of the person with dementia

Resources affecting the situation positively

Acceptation and adaptation

Accept the situation

Find new solutions

Use humor

With God’s help

Support and help

Help from friends and family

Seek knowledge in the literature

Receive professional help

Positive changes in the relationship

Doing things together

Positive contact

Positive feedback

The influence of the DCCs on the family caregiver situation

Respite – assistance to meet the needs of the person with dementia

More fellowship

Inclusion

Social support

Meeting basic needs

Nutrition, sleep, and rest

Improved structure in everyday life

Schedule of daily events

More variation, activity and meaning

Physical activity

Do something meaningful

Get out of home

Positive and negative influence on the relationship

Higher quality of time spent together

Less nagging

More calm, tired, and positively

exhausted

Something to talk about

Easier to cooperate with

Increased wellbeing

Increased engagement and level of function

Fewer conflicts

Hard feelings and situations

Tricking and lying

Increased separation time - more time to meet their own needs

Increased time to spend on own needs

Rest and relaxation Activities

Activities

Work undisturbed

Practical activities

Family and friends

Feeling of freedom

Needs that are not met by the DCCs

Flexibility

Flexible and long opening hours and days

Information, communication and information

Needs of

• information about schedule and content of activities in the DCCs

• feedback about the participant

• information about dementia-related topics (was obtained in classes for family carers )

Quality and content designed for people withdementia

Lack of tailored activities

Lack of inclusion and social support