Table 1 Interview Topics (See Additional file 1 for Interview Guide)

1) Choice in becoming a Caregiverᅟ

2) Duration of Care Recipient Symptoms

 a) Prior to Interview

 b) Prior to medical evaluation

3) Care Recipient Symptoms

 a) Initial

 b) Most troubling

4) Information regarding diagnosis and treatment (Triggers, previous sources, most helpful sources, barriers, expectations and preferences)

5) Information regarding care issues and strategies (Triggers, identification as caregiver, previous sources, most helpful sources, barriers, expectations and preferences)

6) Preferred learning methods and settings

7) Use of Technology

 a) Internet

 b) Computer applications

 c) Touch screen learning device