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Table 1 DEMQOL conceptual framework and mappin

From: Health-related quality of life in the Cambridge City over-75s Cohort (CC75C): development of a dementia-specific scale and descriptive analyses

DEMQOL domain

Item in the CC75C study

Daily activities1

 

-getting around

NA

-keeping yourself clean

NA

-keeping yourself looking nice

NA

-going to the toilet

NA

-using knife and fork

NA

-getting the things you need from the shops

NA

-getting in touch with people when you need to

NA

-getting meals

NA

-taking care of the house

NA

-getting where you need to go

NA

-taking care of your finances

NA

-using money to buy everyday things

NA

-choice about how to spend your time

No

-things that you want to do but you can’t

No

-being able to enjoy what you do

The things I do are as interesting to me as they ever were

Have you lost pleasure or interest in doing things you usually cared about or enjoyed?

Cognitive functioning1

 

-memory for recent events

NA

-memory for names

NA

-concentration

NA

-orientation in time, place and person

NA

-clarity of thought

NA

-making your mind up

NA

-communication

NA

Self-concept

 

-self-esteem

No

-presentation of self

No

-sense of independence

No

-satisfaction with past life

No

-satisfaction with present life

No

-hopes and aspirations for the future

How do you feel about the future?

-feeling useful

No

Health and well-being

 

-global health rating

How would you rate your physical health compared to a year ago?

-happiness-depression

I am just as happy as when I was younger

-contentment-frustration

No

-enjoying life-enjoying nothing

Would you say that you enjoy your life?

-confidence

No

-embarrassment

No

-anxiety

Do you feel more tense and worry more than usual about little things?

-lively-weary

Would you say you have more or less energy at the moment than you did a year ago?

-loneliness

Do you feel lonely?

-somatic complaints

Have you had more trouble sleeping recently than is normal for you?

Have you lost (or gained) a lot of weight in the last six months?

-feeling safe

No

-cheerful

No

-relaxed

No

-irritable

Have you felt more irritable lately?

-angry

No

-resentful

No

-sad

Do you feel sad or depressed or miserable?

-distressed

No

Social relationships

 

-treatment by others

No

-social interaction

No

-reciprocity

Is there anyone whom you help with anything?

-social integration

No

-companionship

No

-social support

There are members of my family (friends) who can be relied on no matter what happens

-intimacy and physical affection

In general, do you have as much contact with family and friends as you would like to?

-other emotional relationships

No

  1. 1Cognition and other daily activities were excluded since they are symptoms of dementia.